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Ria's Rainbow


catmag
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see your all so generous eh

 

I genuinely don't know what tone to read that in, Deaderz :lol: Is it sarcastic, is it heartfelt? GIve me a clue??

 

Dont take the lid off that pandoras box :lol:

 

Anyway, thats great news. Brilliant :)

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Michelle, Paul and Ria fly to America tomorrow ahead of her surgery on the 14th June.

 

All of you who donated and helped us have made this possible and are now changing her life.

 

You're fab :)

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Result. Or at least the first step has thankfully been reached.

 

That's the thing - it's just the first step. Now the long road begins from the minute she goes into the operating theatre. But as Michelle said a couple of weeks ago, they have to give her the chance to do the things that a normal little girl loves to do. She can't run, she can't dance, she can't skip or hopscotch or ride a bike, but they have to take this massive chance that one day she might be able to do any of them.

 

I'm just pretty much in awe of them. It's only been 20 months from them finding out about the surgery to raising the £50,000. Oh, and another amazing story of the kindness of strangers came when MIchelle got an e-mail from a man who had read about Ria in the paper. Shell didn't know him, had never met him, knew nothing about him. This man and his wife have paid for their flights to and from the USA for all 3 of them so that they can save as much of the fundraising as possible for Ria. Amazing :)

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Actually, that was a bit of a fib - Ria can dance if she has 2 people holding her hands to keep her upright and she loves to dance. It's like her feet are stuck to the floor with superglue but she wiggles and shimmies beautifully

 

Girlsweekend001.jpg

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Thought I'd just keep adding more updates - hope no-one minds. They're having fun at Disney before heading to the hospital. 8 days til the operation now..

 

ria1.jpg

ria2.jpg

ria4.jpg

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Well, tomorrow is the day. Ria's surgery involves a neurosurgeon called Dr Park opening her spinal cord, identifying the fibres that are causing the stiffness and spasticity in her limbs and cutting them to alleviate her disability. Whilst Michelle and Paul are scared, apprehensive and emotional about it all, after meeting the doctor yesterday he told them that he's confident Ria will walk, run and play sports unaided. In other words, she will be just like any other 6 year old child and they are entrusting the future of their beautiful daughter into the hands of this amazing man.

 

This little boy will also be having his surgery tomorrow and apparently he and Ria were having races on their frames around the hospital yesterday..

 

282842_3888555525514_1668373426_n.jpg

 

I know many of you don't do prayers, but if you could just keep them all in your thoughts over the next couple of days, I know they massively appreciate all the support.

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What's the story with CP? Does it worsen over time or is it as bad for her now as it'll ever be? What other symptoms does she have?

 

Fingers crossed anyway, hopefully her and this kid are playing without the frames soon.

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What's the story with CP? Does it worsen over time or is it as bad for her now as it'll ever be? What other symptoms does she have?

 

Fingers crossed anyway, hopefully her and this kid are playing without the frames soon.

 

It's not progressive so the disability she has would just continue throughout her life and limit it along the way. Despite being born 3 months early she's had normal mental development but limited motor skills and has had to wear splints to keep her legs straight, she's used walking aids all her life because she can't walk unaided at all and has daily physio.

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So to the extent that this works, it puts her completely "right" then?

 

Pretty much. There's always the potential for the surgical risks which do include permanent paralysis but this surgeon/hospital is the leading centre in the world for this procedure and in something like 2500 operations they've had 3 patients who have had minor complications post-op.

 

There was a young lad from Hartlepool who had it done and was on that Inside Out programme a while ago.

 

http://www.hartlepoolmail.co.uk/lifestyle/health/life-fitness/mitchell_heading_back_to_america_1_4097114

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